Friday, November 27, 2020

The dog nose...


Before Sheena started her cancer treatment, her little dog Chizel was very 'clingy'.  He would nestle up to her more than usual, want to be on her lap - generally be closer. Once Sheena was diagnosed and her treatment started, he was keen to be as close to her as possible.

When she went for chemo at the hospital, Chizel would wait in the car and I would come out every now and then and check on him, take him for a walk, and when Sheena came out (and I drove home), he would want to be on her lap.

Chizel sleeps in our bedroom in his own little bed on Sheena's side. When my cancer treatment started (and probably before that actually), Chizel started sleeping on my side of the bed - with no nice comfy dog bed, just the floor. All thround the summer, through radiotherapy and after, Chizel stayed on my side of the bed.

After coming home from my operation, Chizel went back to his side and the comfy dog bed. I think the dog's nose 'knows'. We know dogs can detect cancer, Covid, Parkinsons, epilepsy  - there are so many amazing things medical detection dogs can do. I am choosing to believe Chizel, that my cancer has gone, but the team at Ipswich hospital want to make doubly sure.

My cancer was removed and the surgeon is happy that a good clear margin was taken all the way round, but one of the many lymph nodes they removed did have a tumour. So the next stage will be some preventative chemotherapy. I will now have to wait for an oncology appointment to find out what and when, and have more scans to make sure it's all going well.

The positive from all this is that the surgery went well and my recovery on that side is good. If Chizel starts coming back to my side of the bed, then I'll get worried! Meantime I'll keep on with the treatment that means I am going to live, and not have cancer, and get on with my life. Next year is going to be a whole new adventure.

I know these are difficult times, but if you have any symptoms that are even slightly worrying you, take action. Call you GP, get tested, because having your mind put at rest is a whole lot better than waiting until treament needs to be drastic. And if your dog or cat starts behaving differently around you, listen to them too.

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Sunday, November 08, 2020

Bag lady

Pre-op pressure stockings
Monday 26 October 2020 I went into hospital for an ultra low anterior resection. Basically, removing a large section of my sigmoid colon and stitching together the two 'ends'. This is major surgery and I was told it would feel a bit like being hit by a truck. No one mentioned that the truck stayed parked on you afterwards as well.

The operation took more than 7 I am told. Laying on the operating table before going into theatre, surrounded by anaethetists and my consultant, another doctor popped in and said hello. It was Neil, who works for the Air Ambulance. 'Look after her, she's one of ours.' Those words - I can't express how much they meant. I knew they'd look after me, but his visit was extra special.

I had a canula put in my hand, and they rolled me onto  my side to put injections into my back as well, and then... blissfull nothingness. 

I woke being taken to the ward - and it's a bit of a blur exept the numbness in my left hand thumb and fingers felt wrong. They changed my drip and my hand began to feel worse and the canula (which was now in my arm and not in the back of my hand) hurt like hell and the vein swelled up like a balloon. I had an allergic reaction to one of the drips and a rash appeared all over my head, neck and front/back. They changed the drip quickly and filled me with anti-histamine.

Although I was pretty lucid the Monday evening - after that I was not with it at all. I couldn't reach my phone on the side table, and if I did have it, I wrote complete gibberish to Sheena. She was phoning the ward and had comprehensible updates from the staff, who were taking excellent care of me. She also updated my family for me. I didn't face time, I looked like hell, felt worse. 

On the second day they removed the dressings from the four scars on my belly where they had laparoscopically removed the cancerous colon. As well as the operation scars, there was also a wound drain from my ileostomy (bag 1), which drained out thin blood like fluid. I had the ileostomy (bag 2) which was so 'productive' they had to switch me to a high volume version. I was on a catheter (bag 3) for the first four days too, and of course I had fluids coming in (bag 4) such as saline and liquid paracetamol. Afer the anaesthetic and morphine I was also very very sick, so they added a nasal drain (bag 5). I hated that most of all.

The pain was not too bad - it was overall feeling completely exhausted, unable to do anything and not thinking clearly. Day two I was moved into a ward with five beds and my little DAB radio with headphones meant I could sleep. That was apart from the fact that at 10pm, 2am, 5am we were woken for obs and meds.


Day two I managed to get out of bed and into the chair for a couple of hours, but 'enhanced recovery programme' meant I was supposed to be out of bed and up and moving a lot more. On the Wednesday I got up, and fainted. I was rolled back into bed by the nursing staff and didn't make my move quota. On the Thursday morning I was still wobbly, but by Thursday afternoon I could get in and out of bed and managed a few more steps. 10 metres was an achievement! The PT team were great, encouraging but not pushing me beyond what I could do.

I was visited by my consultant on the Thursday who asked why I hadn't gone home yet - I think he was being funny! I still had quite a few bags attached, though the nose drain had thankfully gone by then. 

I was kept in the full seven days - with the wound drain only being removed on the Monday morning (and that was a very weird feeling as they removed a long plastic tube from my insides). Monday afternoon and I could go home. No visitors, only a couple of short calls, so seeing Sheena was amazing. The drive home was exhausting, and since being home (nearly a week now) I've done virtually nothing, but sleeping in my own bed and being down to just the one bag is wonderful.

I have a long way to go before I will be fully recovered, and with any luck they can reverse the ileostomy in six to twelve months, but in the meantime I will be taking care so that I can get back to as normal a life as possible, as quickly and safely as possible.

Thank you:

  • Neil, for the visit that boosted me before the operation
    The best nurse in the world! She has to inject me 
    every evening with blood thinners

  • Mr Morgan, for being a very talented surgeon and doing such major surgery laparascopically 
  • The theatre staff, it must have been a long day!
  • All the nurses and HCAs on Lavenham Ward at Ipswich Hospital
  • The Physical Therapy Team
  • The stoma nurses at the hospital and the outreach team who visit me at home
  • Sheena, and my family, for being there and giving me the strength through their love
  • My wonderful colleagues at EAAA, for supporting me and being the awesome team that they are.
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